Help others with thier battles.
So a while ago I posted 3 wishes and I managed to get my house 3 years ago and even tho Hi my appointments won’t ease I have exciting news for my diabetes.
Here’s goes.
About July 2017 I finally got funding for cgm with my pump and it helped a lot but with even that the hypos continued and no matter what me and my diabetes team tried we couldn’t stop the hypos and I still suffered dangerous lows. It was decided February 18 the dr would refer my case to oxford for islet cell transplant. My first appointment was June 18 with a number of consultants , a professor and a transplant co ordinator . We made some changes, talked in depth about the process and even spoke about pancreas transplant. I was to return in 3 months.
September- follow up with the usual team and a few changes helped but nothing major. Again a few changes and tests requested to get things started . Another 3 months went by and by this time I had another bad hypo needing an ambulance . I asked about if I would be candidate for pancreas transplant . They agreed it could be but I needed to see a surgeon to see what he thought and saw them in January .
The talk was in depth and I made my mind up that was I wanted if I was suitable and I needed to
Meet criteria . I had to have a heart test and after this I was taken to a big meeting to see if I was ideal and if I truly needed it. I honestly didn’t think I would .
Well may 18 I got the call to say I was all set to go and just needed to send monthly bloods and I’d be on the national waiting list for a donor .
May 25th 2018 I got the call at work I was all set and on the list. I couldn’t believe it. I was told 12-18 months and I was happy with that as I had a holiday booked and wanted to get school uniforms sorted .
I was due to go on holiday and monthly bloods were due so my dad said to get them
Done before so we didn’t miss any calls . That was the Tuesday and by the Friday that week I got the call.
5am and I still do not remember it all . My poor dad was my taxi and we got to the ward at 7:30 .
Time went past and I was potential for the donor 3’wrrks after being on the list 😳.
Nurses came in to do checks , drs explaining things , me signing a consent form and seeing a
Surgeon . The day went to so quick and by 3pm I was in theatre. My dad was waiting patiently . It wasn’t until 1am the following day I was back in my room. I had it done a new pancreas .i was relieved but this was a long journey .
More to follow here’s Plus I post photos not long after the op so excuse the mess of me.
Promise to update more when I’m on the pc.
Faye x
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