Thursday, 30 August 2018

Pictures then and now fro transplant day. ***** scar photo included****

As I previously said I wanted to update with photos.
Im really proud of my scar and maybe in the future I will do more to promote it and make people more aware of organ donation.
Its life changing it really is. Its not easy far from it and when I have my next op to move it onto my bowel I know what to expect good and bad as Ive had 2 lots of surgery both good and bad.
Please feel free to comment and message me. I want to be able to support people even if its a family member asking for someone or yourself who's waiting on the waiting list. I had friends who had gone through similar and its a relief to know they feel what you feel and understand.
Like a diabetic knowing another diabetic only they can explain the excitement. Don't forget Im still diabetic just a treatment.
So heres my photos.
1st photo- 24 hours after surgery looking glam :-)

My lovely scar.


Day 5, my bloods were playing up so antibiotic and fluids to help.

 I only fancied jelly as even a week after surgery I was struggling with feeling sick. Just plenty of fluids.
 A week after surgery I had to do the glucose tolerance test. I only managed 2/5



 Bloods still playing up 9 days later and more medicine . These really hurt.








 I needed a blood transfusion before my second surgery. I didn't really know if op was happening until an hour before.

11 days after first surgery the 2nd op went well and I felt so much better.
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Home time even after a last min decision I nearly needed to stop in but convinced the I would call of any signs of feeling ill.






My scar now and its amazing. Don't be afraid to show people. This changed my life and its life is amazing.










I'm sorry if I have offended anyone I struggled to find pancreas transplant stories so want to help others and support them through their journey to.
Thanks Faye

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Friday, 10 August 2018

Life gets exciting new update 😃

So it’s been a while since I last updated and I wanted to share my story and
Help others with thier battles.
So a while  ago I posted 3 wishes and I managed to get my house 3 years ago and even tho Hi my appointments won’t ease I have exciting news for my diabetes.
Here’s goes.
About July 2017 I finally got funding for cgm with my pump and it helped a lot but with even that the hypos continued and no matter what me and my diabetes team tried we couldn’t stop the hypos and I still suffered dangerous lows. It was decided February 18 the dr would refer my case to oxford for islet cell transplant. My first appointment was June 18 with a number of consultants , a professor and a transplant co ordinator . We made some changes, talked in depth about the process and even spoke about pancreas transplant. I was to return in 3 months.
September- follow up with the usual team and a few changes helped but nothing major. Again a few changes and tests requested to get things started . Another 3 months went by and by this time I had another bad hypo needing an ambulance . I asked about if I would be candidate for pancreas transplant . They agreed it could be but I needed to see a surgeon to see what he thought and saw them in January .
The talk was in depth and I made my mind up that was I wanted if I was suitable and I needed to
Meet criteria . I had to have a heart test and after this I was taken to a big meeting to see if I was ideal and if I truly needed it. I honestly didn’t think I would .
Well may 18 I got the call to say I was all set to go and just needed to send monthly bloods and I’d be on the national waiting list for a donor .
May 25th 2018 I got the call at work I was all set and on the list. I couldn’t believe it. I was told 12-18 months and I was happy with that as I had a holiday booked and wanted to get school uniforms sorted .
I was due to go on holiday and monthly bloods were due so my dad said to get them
Done before so we didn’t miss any calls . That was the Tuesday and by the Friday that week I got the call.
5am and I still do not remember it all . My poor dad was my taxi and we got to the ward at 7:30 .
Time went past and I was potential for the donor 3’wrrks after being on the list 😳.
Nurses came in to do checks , drs explaining things , me signing a consent form and seeing a
Surgeon . The day went to so quick and by 3pm I was in theatre. My dad was waiting patiently . It wasn’t until 1am the following day I was back in my room. I had it done a new pancreas .i was relieved but this was a long journey .
More to follow here’s Plus I  post photos  not long after the op so excuse the mess of me.
Promise to update more when I’m on the pc.
Faye x